Resources


Diagnostic Toolkit

Diagnostic Guidelines

Information to guide clinicians when making a diagnosis of FASD.

Canadian data for palpebral fissure norms

Clarren SK et al Normal distribution of palpebral fissure lengths in Canadian school children Can J Clin Pharmacol Vol 17(1) Winter 2010:e67-e78; February 10, 2010

Diagnostic Tools

Useful references when making a diagnosis of FASD.

London Middlesex FASD Community of Practice (CoP)

What is the CoP?

The London Middlesex FASD CoP provides a place for professionals working with children and youth in the London Middlesex County to connect, collaborate, and develop knowledge in relation to FASD, and then to engage in knowledge transfer when they return to their respective community agencies. The purpose of the CoP is to build capacity in the professional community for prevention, assessment, and service delivery in relation to FASD in the London and Middlesex County.

Co-Chairs of CoP

Rachel Bezzina, RSW

LFCC – FASD Project Clinical Manager
Rachel.bezzina@lfcc.on.ca
519-878-FASD (3273)

Carolyn Cope

Community Services Coordination Network – London Middlesex FASD Service Coordinator
Carolyncope@cscn.on.ca
519-438-4783 ext. 136

Member Agencies of CoP

London Ontario FASD Caregiver/Parent Advisory Committee (CPAC)

What is CPAC?

CPAC is a broad representation of caregivers and parents of individuals with suspected or diagnosed FASD in London Ontario and surrounding areas. The purpose of the CPAC is to ensure the implementation of the mantra “nothing about us without us” in planning and capacity building related to FASD.

Co-Chairs of CPAC

Ginette Lamothe & Natalie Davison

fasdcpaclondon@gmail.com

Education

FASD resources in Ontario: https://fasdontario.ca/

FASD Support Groups in your area: https://en.healthnexus.ca/

Online FASD training: https://canfasd.ca/

Strategies and tools: https://www.fasdwaterlooregion.ca/strategies-tools

Teaching kids with FASD: http://www.lindsaykomar.com/fasd.html

Advocating for students with FASD: http://www.come-over.to/FAS/schooladvocacy.htm

Advocacy and Peer Groups

FASD ELMO Network: https://fasdelmo.wordpress.com/

FASD Support Groups in your area: https://en.healthnexus.ca/

FASD Parent-Parent  Mentoring Support | Southwest Ontario:  https://www.facebook.com/groups/FASDCONNECT/

Ressources en Français | French Resources

Documents
Parlons de l’ETCAF

Information for parents and caregivers about routines, behaviours, advocating for your child;
some personal anecdotes/stories; information on accesing professionals. Note: uses outdated
diagnostic terms (64 pages)

Des gestes qui comptent : Pour aider les élèves atteints de troubles causés par l’alcoolisation
fœtale

A comprehensive reference guide for elementary and secondary school educators. Note: uses
older FASD terminology (114 pages)

Ce que les éducateurs des jeunes enfants doivent savoir au sujet de l’ensemble des troubles
causés par l’alcoolisation foetale (ETCAF)

A resource book for early childhood educators or parents about how FASD affects children
before they are school-aged. This book describes how FASD affects the brain and includes
strategies to use in a child care setting or at home (68 pages)

Ce que les éducateurs doivent savoir sur l’ETCAF

A resource book for teachers, educational assistants, parents or anyone supporting school aged
children with FASD. This book describes how FASD affects the brain and learning and includes
strategies to use in school and home to assist students (90 pages)

Chaque journée est une véritable aventure : Ce que les parents et les fournisseurs de soins
doivent savoir sur l’Ensemble des troubles causés par l’alcoolisation fœtale (ETCAF)

Strategies for parents/caregivers of children with FASD; information on self-care; teaching
children life skills (68 pages)

Message au personnel enseignant

Tips for educators/teachers on helping children with FASD succeed in the classroom (4 page
booklet)

L’handicap invisible – Le trouble du spectre de l’alcoolisation fœtale

A simple 8-page booklet with several topics related to FASD. It offers a concise overview of FASD
including information on alcohol and pregnancy, FASD, success strategies, hope stories and a list
of resources.

L’ETCAF Des stratégies, non des solutions

Information for parents and caregivers on sensory dysfunction, impulse control, behavior,
emotions; some information on navigating the criminal justice system; communication
techniques (60 pages)

Comprendre et aider dans leur scolarité les enfants présentant des TCAF

Brochure de sensibilisation à l’attention des médecins scolaires (8 pages)

Troubles Causés par l’Alcoolisation Fœtale, GUIDE POUR LES PARENTS & LES AIDANTS –
Association Vivre avec le SAF (160 pages)
Parler de TSAF : Un lexique pour la promotion de la dignité pour les personnes touchées par les
TSAF

This guide is intended to provide alternative words or phrases for those commonly found in
news media and other public communications. We propose these be used in an effort to
promote the dignity of those living with FASD and their families.

Websites
TSAF Ontario

La source d’information fiable et à jour sur le TSAF pour l’Ontario

https://www.fasdinfotsaf.ca/fr/

CAN FASD – Canada FASD Research Network

Offers most of their FASD courses in French and has other French resources

www.canfasd.ca

Gouvernement du Canada

TSAF, causes, signes et symptômes, effets sur la santé, prévention, soutien offert et
informations pour professionnels.

https://www.canada.ca/fr/sante-publique/services/maladies/troubles-spectre-alcoolisation-foetale.html

La Commission de la santé et des services sociaux des Premières Nations du Québec et du
Labrador (CSSSPNQL):
SAFERA – Organisme d’aide pour les personnes atteintes du trouble du spectre de l’alcoolisation
fœtale et leurs familles

A site for a Quebec organization that offers training, books, brochures and DVDs on FASD in
French

http://safera.net/

Vivre avec le SAF – une association française de familles adoptives, biologiques ou d’accueil
concernées par les Troubles Causés par l’Alcoolisation Fœtale (TCAF) ou le Syndrome
d’Alcoolisation Foetale (SAF).
A French site for Speech Therapy as it relates to FASD